I am getting ready to have thyroid removed due to cancer. I am in the military, stationed in Fl. Both hyperthyroidism and hypothyroidism cause intolerance to heat and cold respectively, so that isnt uncommon but what is uncommon is to experience those symptoms after RAI. More important than how the procedure works is how it will affect you afterward. It is what it is. They ran many tests including an cerebral angiogram to check for a brain tumor which I doubted. Until that time, you will give off radiation in your sweat, your saliva, your urine, and anything else that comes out of your body. The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. Please help me what to do with this. I have to take my Levothyroxine at midnight, as in the morning it causes me to have a jitteriness and brain fog, that is bothersome, and to have it in the time frame away from other meds and meals, midnight is the only option. If you drive home after your appointment and there's another . Iodine, an essential mineral, may affect hair health and hair growth through its effects on thyroid function. Calculating the half life of radiation, it will be a couple months before I can be around nursing home residents and pregnant women, and each and every nursing home has several pregnant women on each unit and each shift. Free androgen index was :24.21(24-104) and endocrinologist said RAI didnt work I dont understand how thyroid levels goes up after RAI treatment 21.04.2017). Before you or any family members have RAI treatment, it is strongly recommended that you read up on post-RAI guidelines and speak with your healthcare providers about how they should be applied to you. Even at this age, I still want to feel and look pretty. The presence of any of these symptoms AFTER your procedure (especially if you didnt have them prior to your procedure) may be an early indication that your thyroid medication is not optimized. My endo physician would not increase the dosage so I went to my G.P. I know, I know, I shouldnt be so vain. #2. LH :4.12(1.70-8.60) My question is even though my thyroid is dead, should the T3 and T4 level be tested as well? He may be the one with that piece of paper that says he can prescribe and administer that damned pill, but I have a gut feeling hes too cavalier about it all. A large study found an increase in some cancer types in people who had radioactive iodine treatment for hyperthyroidism compared with the general population. So far I feel strong and as I did before. Avoid sleeping in the same bed with a pregnant woman, infant, or child for a period of six to 23 days. They all tell me Thyroid Cancer is the easy cancer. Can Hashimotos Be Reversed? And if the color is hash on the . The hardest time I had and have with my diet is getting hospital dietitian to understand that vegan/plant based does not mean fish and chicken are allowed. You may also experience nausea and vomiting, as well as a decrease in appetite. You can opt-out at any time. You can find my recommendations on how to manage hair growth/hair loss with thyroid disease in this detailed guide: https://www.restartmed.com/thyroid-hair-loss/. Are you thinking about getting radioactive iodine treatment? Its definitely possible it just takes more time and the weight loss is slower. <0.01 Researchers estimated a 12% increased risk for death from breast cancer and a 5% increased risk for death from . Radioactive iodine treatment. Sign up to receive 20% off your first order. Answer (1 of 9): I have direct experience with this question because my wife had radioactive iodine treatment for her thyroid cancer and she was supposed to stay away from me and our parrots for 3 days until the radioactive iodine dissipated from her system. So, I have to laugh at your 80 to 90% back to a normal life. . Hello Dr .Child For example, uranium has thirty-seven different isotopes, including uranium-235 and uranium-238. Center for Hormonal Health and Well-Being, Information for patients administered radioactive iodine (I-131), Fact sheet: guidelines for patients receiving radioiodine I-131 treatment. The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that arent always in your control. Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. Are those levels indicative of something going wrong? A thyroid scan is a type of nuclear medicine imaging. The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone. Warm shades on cool undertones can make you look washed out or dull. Abnormal menstrual cycles. June 10, 2022 . I am gaining weight! My symptoms include very dry skin, heart problems, severe pain, muscle problems, joint issues, sometimes brain fog, hair is brittle and dry, constipation, stomach issues, basically nothing is right since the treatment. Because it is entirely possible to only destroy a portion of your thyroid gland and not the entire gland. 2. MY QUESTION IS AM I ABLE TO WORK ABROAD WITH THIS. Many doctors recommend that women avoid becoming pregnant for 6 months to a year after treatment. But, I am having a lots of rashes all over my neck and scalp, it got swollen and bumps. The permanency can be seen as a benefit as patients condition will become stable and symptoms can be more easily controlled. This isnt always true, but it is true for MOST people. How is this happening? It Depends on These Factors, Add Back Therapy for Graves & Hyperthyroidism: When to use Levothyroxine, Hashimotos and Hyperthyroidism: Why it Happens & What it Means, How to Prevent Thyroid Surgery and Radioactive Iodine Ablation Therapy | Dr. Osansky and Dr. Childs. I dont want to go back to him but no one else will see me without a referral since Im still considered his patient. What should I do after this treatment to restore my metabolic functioning and gut biome? Tips for Eating and Cooking While on a Low Iodine Diet. For this reason, its ideal to try and lose weight prior to the procedure as opposed to after. 20 yrs ago. The average thyroid patient gains about 15 to 20 pounds after RAI/thyroidectomy and this weight is more pronounced if the thyroid patient was overweight prior to the procedure. They wanted to give me more RAI IV for test, but I refused and I know I would have died had they done that. Improving gut function can be done through diet and supplements. Read More. can i color my hair after radioactive iodine. Theres no way for doctors to give you a pill once a day and for that pill to perform the exact same function that your thyroid gland does every minute of every day. I cant find anything suggesting these are expected symptoms after RAI. You might need contrast when you are having an X-ray, CT, MRI, or ultrasound exam. The thyroid gland is the only tissue in the body that takes up and holds onto iodine. Iodine-131 (I-131) is radioactive. Radioactive iodine is a type of iodine that is radioactive - iodine 131 (I-131). 240-760-6600. and seriously lethargic?! Because it changes how you should be thinking about your medical condition, it changes the types of natural treatment options that may be available to you, and it changes your treatment. I was tested in 6 weeks and my thyroid numbers were still high so I was not tested again until Feb. 2019. I ordered the dutch test so have those results but I cannot read it and I am not sure what it all means. Not everyone gains weight after RAI, if thats what you mean by treatment but if you are going to, it will start within 4-6 weeks of the procedure and may continue for several months. Certain 'hair supplements' should be avoided as they may contain iodine or interfere with levothyroxine . I dont feel like I have gone back hyper after being off my meds for 4 weeks. The study followed people for 26 years after two or more treatments. The highest sources (and those to be avoided) are iodized salt, grains and cereals, some breads . Well since this journey has began Ive lost almost all of my hair and gained a ton of weight. Cats can receive a second treatment, if necessary. Ultrasound can also be performed if . Thank you and God bless! Now they are suggesting a second treatment at a higher dose. If you dont have thyroid hormone at all then you risk the chance of coma and death. Will it cause you to gain weight? Protecting Your Family After Radioactive Iodine Treatment. I go to great lengths to help my users better understand their health; however, the content you see here is not a substitute for medical advice. One study looked at 157 people and tracked them both before and after their procedure. I had a miscarriage about a year after the RAI treatment. I am on NP with an additional Synthroid to balance me out. #1. https://www.ncbi.nlm.nih.gov/pubmed/22914564, #2. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5413587/, #3. https://www.liebertpub.com/doi/abs/10.1089/thy.2010.0090, #4. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5455212/, #5. https://www.ncbi.nlm.nih.gov/pubmed/28545679, #6. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3336179/, #7. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4851449/, #8. https://www.ncbi.nlm.nih.gov/pubmed/18832945. I have been tested and my doctor says that Im right where I need to be. I have since been on a roller coaster ride with the levels fluctuating up and down and not sure why. The combination you would want to try if you are post RAI is as follows: Thyroid Daily Essentials 1 packet each day https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/ I have Hypothyroid Mom readers struggling with hypothyroidism now since treatment for their Graves' with radioactive iodine (RAI) or thyroidectomy. To protect family pets, do not sleep with them for up to 21 days. 5. Is it healing and producing its own thyroxine now? Radioactive iodine ( 131 -I) is a radioactive isotope that is administered orally, in a liquid or capsule form. But what if you only destroy 30 to 40% of your gland function? Also learn more about our which will minimize the contamination in your home's isolation room. (I also bought a digital scale to get the most accurate weight) Then my full set of VS and glucose readings. One of the more surprising aspects of getting RAI done is the fact that you are quite literally radioactive after your procedure. My problem now is my hair loss and I cant help get rid of this problem. My entire life has been turned upside down. what is the normal amount of time a person needs to be off thyroid supplemental medication before the radioactive iodine treatment is done? The short answer to this is no taking iodine supplements will have little to no effect on your hair growth. Should you expect to live a normal life afterward? With a regime as this, its no wonder for depression, no sleep! It doesnt appear that the first treatment was sufficient to destroy the hot nodules (or there is some other issue). Hi Prior to my RAI my level was .03. . My throat is killing me and outside of my neck is swollen. I had RAI treatment for severe Graves disease in 1993. For my surgery in April, I had a double whammy because a week prior to my surgery I had a molar tooth extracted with surgical dental sedation, and was still on a soft diet, so that was easy, they supplied me with baby food pureed fruits the entire time I was in the hospital. It may sound counterintuitive, but youll understand why you might want to after your procedure. Redness, tired eyes, they were seeing double, and not accommodating going from reading to distance. Yes, radiation therapy causes hair loss. I am on my own taking more precautions, and going at this as a Haz Mat Tech, Yes, Im that too, as I am a volunteer fire fighter/EMT/ and wear many other hats as well as Haz Mat Tech and am certified in Decon operations. I read your list of vitamins all NINE of them, and the only thing I could think of is NO! The majority of radioactive iodine, therefore, will be absorbed by any remaining thyroid cells. Credit: iStock. You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. You usually take radioactive iodine as a capsule that you swallow. Radiation can be measured around your body and I-131 is present in your skin oil and sweat. Get my free thyroid downloads, resources, and PDFs here. This is my story. 2 capsules of T3 Conversion Booster daily (important if you take T4 only medication!) Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. I know it Hass to be because it started affecting me as soon as I Started losing weight and before I had been diagnosed. A high uptake of radioactive iodine suggests Graves' disease. If so, what are you struggling with? 12 noon, lunch and VS with glucose readings. I'm Dr. Westin Childs. After rai treatment I had blood test results was :freet4 was 13.3pmol/L (11-23)free t3 was 4.30pmol/L it was normal (3.1-6.8) I was happy and I had another blood test 26 July 2017 and results was TSH was 0.01 (0.35-4.94) freet3 was 16.32 pmol/L (never ever high like this before) (3.1-6.8) my freet4 was 46.3 pmol/L (11-23) I was shocked how this happened after RAI treatment Sir ? is this a side effect of this proceedure. So, when I get up at Midnight unless I stay up that late, I get a full set of VS plus my glucose readings, and take my Levothyroxine. I eat all organic. Thanks look forward, Yes! She said I am normal and not to worry. Life has been very difficult as I basically go very few places now and live a life with little social contact. For most people, this means that you can expect to live at 80-90% of your 'normal'. Hi , I just had ROI treatment done a little over a week ago . that I need doesnt come in one pill so Im taking 100 mcg one day and 75 on the other. American Thyroid Association. This particular visit, my HA1C was up to 6 point something, and caused alarm as I am strict with my diet, admit though at that time I allowed myself a free day to eat as much and all the treats I wanted or craved. Just have my RAI 2days ago. I had radiation treatment for my thyroid 5 days ago to shut down my thyroid. Yes I took the radation iodine pill five days ago what can I take for itchy skin I got some cortisone will that help. In regards to diets that can help, please see this article: https://www.restartmed.com/hypothyroidism-diet/. meat. Dr.DanielleWeiss is the founder of the Center for Hormonal Health and Well-Being, a personalized, proactive, patient-centered medical practice with a unique focus on integrative endocrinology. I was normal weight and now frustrated to be 30 pounds overweight. Along with a pain and numbness in my right hand. As so many of you, I too was very unaware of the many causes of having your thyroid removed can have on a person, or the underlying affects that can be caused by the I-131 RAI "therapeutic" radioactive iodine treatment. New study findings show an association between the dose of a common treatment for hyperthyroidism and risk of death from solid cancers. I have been on bioidentical hormone replacement therapy for 3 years now and feel somewhat better. I work hard at it. (former Osteopathic Physician). They do this by either stopping your oral thyroid medication or giving you thyrogen. can i color my hair after radioactive iodinesvetlana invitational 2022 Consultation Request a Free Consultation Now. And that training tells me I wont be ready to go back to work that afternoon. So is there any possible way to lose weight after the Radioactive iodone treatment or is it pretty much an absolute lost cause? But my surgeon palpated three nodules and pathology report confirmed PTC, so a completion surgery was scheduled and performed this past April, and that lobe also showed cancer nodules on pathology report as well as some tissue purposely left because some cancer nodules had invaded my vocal chords. So I stopped going. If you will be traveling via airplane or crossing an international border in the period following RAI treatment, you must be provided with a written document from your healthcare provider stating they you have been given a medical treatment involving radiation, as security monitoring devices can detect it. How will I know if I am producing my own thyroxine? Its often a far better use of your time to find a new doctor than try to convince an old doctor to change what they think: https://www.restartmed.com/how-to-find-a-doctor-to-treat-your-thyroid/. rice and dries pasta. The iodine is taken into the thyroid gland and incorporated into thyroxine. I had RAI treatment 4 weeks ago 29.9 mci due to hyperthyroid hot noduals. She enjoys giving lectures and writing articles for both the lay public and medical audiences. I have expressed my symptoms to the dr and she did a panel revealing my TSH to be 3.687. I had RAI about 15 years ago and yes I have gained weight, less energy & I sweat a lot(buckets) doing nothing Im so confused my gp has no explanation my hair is falling out I dont eat anything only 3oranges a day and pure fruit juice now I have moderate atrophy on my pancreas and I cant get into a specialist for 1-2 years ., can h explain whats really going on, Please see this article for more information on managing hair loss with thyroid problems: https://www.restartmed.com/thyroid-hair-loss/. In regards to your question, its normal to feel terrible if your TSH is so high, but its not normal for your doctor to try and not optimize this level. These are just a few of the questions that I want to answer in this article. Family Medicine 59 years experience. I know I shouldnt be so vain, but honestly I am on this. It was not and I have been searching for help ever since. Please help! In the mean time, Im feeling worse about myself than with this original post. Leave a Comment Cancel Reply . A single injection is given subcutaneously (i.e. It's permanent; once you take the iodine capsule there is no changing your mind. Homocysteine down to 11.5, methlymalonic acid down to 257. To hide grays, try rhubarb root in two cups of water, simmer, strain, and pour over hair. They may even preemptively schedule you to start thyroid hormone treatment within a few weeks of the RAI procedure, just to be safe. Im hoping I still have some thyroid function based on the fact that he kept lowering my dose of levothyroxine and I can just take your supplements and see some weight loss and feel a bit better. All rights reserved. But Im not a pretty woman, rather plane, and frumpy. Its the working hard for absolutely nothing that I dont want to do! Iodine is essential for proper function of the thyroid gland, which uses it to make the thyroid hormones. I has RIT approx. If your head and scalp are exposed to radiation (usually after a brain tumor surgery), it can affect the hair follicles and cause hair loss while the rest of the body may be unaffected. I am concerned. If you are a man, just be sure to consider this before you get your operation. Many clinical studies have also confirmed that weight gain after RAI is a real risk. 08 July, 2011. This may or may not be important to you based on your age, your gender, and whether or not fertility is something you are interested in but, again, its worth knowing about. Im a nurse, and tend to over think things. Very small amounts of radioactive iodine may be absorbed by your salivary glands, and the lining of your stomach, which may cause side effects such as a sore throat or hoarseness. They are planning radioactive iodine in the future. Its drastically changed my life. People who do have hyperthyroidism tend to have a fast metabolism, but the treatment for hyperthyroidism (the medication you are taking) slows down the metabolism dramatically which leads to weight gain. I was experiencing heart palpations, diffuclty breathing while lying down, weight gain. I was recently on Naturethroid for some years and it seemed to be a better choice for me, it was quite the battle to get the Drs to prescribe it. My blood work prior was I had RAI treatment nearly 2 years ago, and deeply regret it. And Ive become Flat with my emotions now. Then too, my annual eye exam with dilation is due now, that appointment is upcoming, as well as further dental with my regular dentist now that I have the one impacted and rotted tooth extracted. But why would you want to restore thyroid function to your thyroid gland if you had it destroyed because you were already producing too much? Iodine is found naturally in some foods and is also added to salt that is labeled as "iodized". Serum folate levels was :17.1(2.0-18.7)b12 vitamin levels was :565 (197-771)ferritin levels was :175.9(30-400)red cell count was :4.87(4.25-5.77)white cell count was :5.6(4.5-13.0) I dont understand how this happened sir ? #3. U.S. Nuclear Regulatory Commission. I have been asked to transport a friend who is having Radioactive Iodine treatment both the day of and a couple days later for her followup scan. The next person to tell me how easy this cancer is, Im going to pull their toenails out threw their nostrils then tie them in a knot out their but hole. I welcome Barbara Lougheed, author of the book Tired Thyroid: From Hyper to Hypo to Healing - Breaking the TSH Rule. The thyroid is equipped with an active system or "pump" for moving iodine into its cells, where it is concentrated as iodide. The most common reason for RAI is the autoimmune condition known as Graves disease (6). They also found that nearly 1 third of all patients (31.2%) moved into the overweight or obese category from a lower weight category (based on BMI charts by the CDC). When the gadolinium is injected, it is normal to feel coolness at the site of injection, usually the arm for a minute or two. Potassium iodide (KI) is a type of iodine that is not radioactive and can be used to help block one type of radioactive material, radioactive iodine (I-131), from being absorbed by the thyroid. This usually means that you are being overtreated and are being put into a state of hypothyroidism. What can I be looking at regarding weight gain. And to key to getting there is to understand what happens to your body after this procedure and how it influences your thyroid function. If you have heard of this before is there a natural vitamin or something that will help me control the heat in my body? SPECT/CT scan can contribute to establishing a final diagnosis in patients being evaluated for atypical locations of radioactive iodine accumulation after ablative doses of radioactive iodine, distinguishing between metastases from DTC and false positive accumulations or artifacts. to covid weight, but now the hair loss! The real concern with radiation exposure to others in your family has more to do with them coming into contact with actual contamination. It probably wont be an issue if you left but you wouldnt want to find yourself in a situation where you are unable to get your thyroid medication and your symptoms are poorly controlled. who gave me 150 of Synthyroid. I had the motto: Ive never met a stranger, they are just the friends I havent met yet. Now, I would rather not talk to anyone, and if Im forced to, I keep it to bare minimum. Thyroid Hormone Resistance: What is it & How to Diagnose it. And, if you destroy your thyroid gland, it turns out that that may have consequences on your metabolism. Mary Shomon is a writer and hormonal health and thyroid advocate. My doctor has changed my meds 5 times I was doing better if my medication was a little on the high sideI had started to lose wait, had more energy & the best ever NO SWEATS, but she said no, WHY! I guess that is my main question because I am willing to do the hard work even if it takes a long time. To help prevent thyroid problems that may cause hair problems, it's important to get sufficient dietary . No one said it could be from my low thyroid, but I found clinical trials that mentioned it was rare but could affect eyes and should be treated aggressively. Free T4. I saw 2 eye professionals. General Information. Warren Janowitz Radiologist Miami, FL. Severe reactions occur in 0.04% to 0.02% of people receiving contrast, with a death rate of one person in every 170,000. Radioactive iodine treatment is a therapy that your veterinary surgeon may recommend if your cat is diagnosed with hyperthyroidism. Hyperthyroidism is a condition where your body produces too much thyroid hormone so the treatment is to destroy your thyroid gland and stop that production. This is possibly TMI but any guidance and suggestions would be greatly appreciated. Iodine is a mineral that your thyroid uses to create thyroid hormone. I HAD MY RAI LAST SEPTEMBER 12, NOW IM ALREADY 2 MONTHS AFYER MY RAI. This shouldnt stop you from trying natural therapies (as long as they are relatively inexpensive and not harmful) but you should have reasonable expectations as you do so. Within the first 2 years I gained 15 pounds with no diet/lifestyle change. My eyes improved for a while but now seem to be getting worse. My supplements can help but they will not take the place of thyroid medications like levothyroxine. The symptoms of hyperthyroidism presented themselves very quickly and I was very sick when I had the ablation. Doctors use nuclear medicine to diagnose, evaluate, and treat . Thank you for any advice! Wash your clothes and dishes separately from your family's so you don't contaminate their belongings. The amount of iodine taken up by your thyroid is then measured. You can drive yourself, have someone pick you up and take you home, or take a taxi or private car. Will destroying your thyroid gland have long-term consequences? Graves' disease is an autoimmune disease that leads to overactivity of the thyroid gland (hyperthyroidism). Can I dye my hair? They have already said I would need to take the radiation iodine treatment. The trip will be about 45 minutes each way. Memory loss. It is a good idea to increase your fluid intake after an imaging exam involving an iodine-based contrast material to help remove the contrast material from your body.

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